Being one of the most diverse countries in the world, India is a subcontinent that has a number of challenging issues for patients. Especially, in the case of blood cancer, the right diagnosis is mostly characterized by wrong information and feelings of distrust. The exponential growth in population and the proportional growing demands are such, that even with even large volumes of hospitals and medical facilities throughout the country, there are several matters still in question. Access to quality medical service for rural people is still a bothersome fact, as most of them simply are deprived of such access. The inadequate manpower of doctors in public sector hospitals is another area of concern for a number of health authorities. Furthermore, the infrastructure in the hospitals, are not adequate and fit enough to serve such large volumes of population.
Patient Services: Goal And Plans
The goal of “Patient Services” at DKMS-BMST is to address and support the unmet needs of the patients and help in improving the access to treatment for the patients and their outcomes.
The “Patient Services” team at DKMS-BMST aims at providing accurate and updated information related to medical issues (about diseases requiring transplant, transplant-related information, and about various Transplant Centers in India).
We try to be the first point of contact for patients and their caregivers, who are looking for an unrelated donor with a perfect match. After which we also plan to get a blood stem cell transplant done. We understand their needs and guide them with precise information and link them with various service providers. We act as a knowledge center and be a patient advocate at each and every stage.
As a patient counsellor throughout the entire decision-making process, every effort should be made to sustain and enhance the autonomous choice of the patient. There should be effective use of communication skills that enable the patient to fully understand the favorable and adverse outcomes of the procedure. In India the "rule of descending order", that accounts for the patient's educational, social, cultural and family background besides his/her overall ability to comprehend, must be kept in mind. A combination of all these factors ensure that the patients fully understand the advantages and disadvantages of the procedure, as well as the importance of competent support from relatives and/or caregivers during the pre and post-treatment period. Patients should be aware that they are responsible for the outcome as they make the final decision. Full details on self-care and fundamental lifestyle changes are mandatory. We help them connect with organizations providing counselling and nutritional support. We educate the patients and their caregivers on various options to register potential donors. The options provided would be as follows :
The patient in need of a stem cell transplant are given counselling service which supports them during difficult times. It involves developing a healthy relationship between a professional counsellor and the patient. The counsellor can help you to identify and resolve personal, social and emotional problems related to the illness and the stem cell transplant. The counsellor can also help you improve your coping skills and quality of life in some way or another. During this counselling, the counsellor will then offer their recommendations on how you can work to reach your goals.
When a family member or a friend is battling a disease that may require a hematopoietic stem cell transplant, many questions, doubts and fears are bound to arise in anyone’s mind. . Remember that these uncertainties are legitimate and very human. can contact the Patient Services Team during such precarious situation.
Often, waiting to find a compatible donor could leave you feeling useless and helpless. The moment of waiting in fact, can be very demanding, not only for the patient, but also for those around him.
Along with the Physical and Financial challenge, the stem cell transplant process and recovery can be very cumbersome for the mental and emotional wellbeing of the patient and their caregivers. Emotional support during this time would make them feel that we are just a call away and assure them with the fact that we are always there to listen and guide them.