Thalassemia Program

Thalassemia Survivor - Srinidhi
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Thalassemia can be treated!

Thalassemia which was once considered a cumbersome disease with lifelong blood transfusions, iron overload and limited lifespan has seen a shift in the last decade with Blood stem cell transplant often the only curative option. Blood stem cells are collected from the blood of the donors and transplanted into the Thalassemia patient after their bone marrow has been destroyed.

Goal of DKMS-BMST Thalassemia Programme:

To support Thalassemia patients in India, and neighbouring countries by enhancing the access to a potentially curative treatment option of a stem cell transplantation, thus improving their health outlook.

Objectives:

  • To collaborate with institutions engaged in the fight against thalassemia.
  • To raise awareness about stem cell transplant as a possible treatment option together with various Thalassemia Programme Partners.
  • To provide access to free high-resolution HLA typing for patients and their related donors (siblings, parents).
  • To provide access to free searches for matched unrelated donors, in the absence of any matched related donors.

Who can benefit from this program:

Financially Underprivileged Thalassemia patients in India, and neighbouring countries, who are:

    • Eligible for a stem cell transplant
    • Have siblings and/or parents willing and available to be searched as a match for the transplant.

Our Partners

Apollo Indraprastha
Aster CMI
CMC ludhiana
DMCH
GIFT
HCG
Lets help some1
Narayana Health
PATUT
RGCI
Kokilaben
TAVF
Thalassemics India
TSCS

Dr Joseph John, CMC Ludhiana

“Witnessing the transformed lives of the ex-thalassemic patients and hearing the testimonies of the donors would offer us an occasion to experience the supreme ethic of love. Let us seize the enriching, risk-free opportunity to offer our stem cells (blood) to be circulating in another child to render him/her a transfusion-free life.”

Dr Santanu Sen, Kokilaben Dhirubhai Ambani Hospital, Mumbai

"The DKMS-BMST Thalassemia Support programme which provides for free HLA typing for Thalassemia patients and their families have brought a ray of hope and chance of a cure to their children. Making this essential test free for the patients has galvanised the transplant programme in India making it accessible for all!"

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Success Stories
Bibek with his parents
Bibek
Thalassemia Survivor
"Diagnosed with Beta-Thalassemia major as a child, I was receiving blood transfusions with iron chelation to manage my disease. After some time, the doctor suggested the best course of action, to improve my health drastically, is a stem cell transplant. CMC Ludhiana initiated a MUD search and I was fortunate enough to find a matching unrelated donor in the DKMS registry. The transplant was highly successful and now I’m finally free from immune suppressants and medicines and I can look forward to a healthy life!"
Japishman
Thalassemia Survivor
"At only 4 months old, I was diagnosed with Thalassemia major and for years my parents thought the only treatment option to help me survive was blood transfusions, which I underwent for more than two years. Finally, I met Dr Joseph from CMC Ludhiana, who explained to my parents about the possibility of a blood stem cell transplant as the next course of treatment. Within only two months, I was able to find a matching donor from DKMS who gave me a second chance at life!"
Sidakpreet with parents
Sidakpreet
Thalassemia Survivor
"On 1st February 2014, I was diagnosed with Beta-Thalassemia major and it completely devastated my family. They approached many hospitals for help and I finally started receiving blood transfusions with iron chelation every 15 days, but these transfusions were only a temporary solution. Fortunately, I got matched with an unrelated donor from DKMS and had a successful blood stem cell transplant with the help of CMC Ludhiana. I no longer have to take any medication and can now live my life to the fullest!"
Sara
Sara Ali
Thalassemia Survivor
"After being diagnosed with Thalassemia, I had to receive painful blood transfusions every 3 weeks. I couldn’t play with my friends and enjoy life with my family. Everything changed when I met Dr Santanu Sen from KDAH, who was like a guardian angel to me. He suggested an HSCT with my sister and on 29th August 2019, the transplant was done successfully. I’m grateful to my family, and for the support, I received from PATUT and KDAH in helping raise funds for my transplant. Now, I am completely cured of my disorder and can live a healthy and normal life!"
Help us to register even more lifesavers
We’d love it if you could help us get more people on the registry so that everyone who needs a blood stem cell donor can find their match.